Birthday

Dear Big Brother,

Today, you would have been 58 and in a few short weeks, I’ll be 50… You could see 50 so closely the day you left this world, were you excited about it?

This is such a weird journey on my own. Yes, I have lots of people in my circle, many of the names and faces you would remember. Our family-circle has shifted and changed and it still isn’t right without you here. Even though we not super involved in each others day-to-day life; I always had the promise of you. I always knew you were at the other end of an email or phone call. And now, now I can’t help but feel a little lost.

So in true Little Sister fashion, Big Brother, I have a few questions…

Is there Bingo in heaven, if not, I bet Mom is super pissed

Has Dad made peace with God yet?

Is Grandma Hedges still gloating over all the times she gave me the wrong ingredients to a recipe, so I’d fail and she would be needed to make it right?

Is Uncle Stan still playing the piano and telling bad jokes?

Did DiAnn make in the gate ok? She probably gave Saint Peter a rough time

I don’t remember Grandma Blanchard, does she remember me?

Does Jesus still do the water into wine trick? Golly, I hope so

Uncle Hink still has a harem, doesn’t he?

Will you save a seat for me, next to you? I’ve got a lot of shit yet to do here and lots of people to annoy.

Miss you much.

XOXOXO,

Me ❤️

p.s. I still haven’t forgiven you for locking me in the dryer, but we’ll hash that out when I get there

One Word

2017 was the first year I purposefully set a “one word” into being, rather than offering up a well meaning, but never fulfilled “resolution”.

My word for 2017 was Boundaries. I totally lost sight of my word, allowed myself beyond boundaries that were healthy or helpful. My word rediscovered me, revealed itself where I had least expected, and showed me lessons learned while I wasn’t looking.

My word for 2018 can be found in the waiting; for my 3rd grandchild to be born, for a BIG birthday year, and the vision of a 2nd book (yet to be written).

My word can be found in the hoping, believing in better health solutions and for relationships restored.

Yes, I can safely say, 2018 is to be filled with Expectation!

Cheers to 2018! And all that you are expecting!!

I’ve Been Slimed

 

The day after (the election) feels as though I’m in the  sequel to Ghostbusters. For those of you who are not familiar with Ghostbusters 2, allow me a moment to share the CliffNotes version of the storyline…

The ‘Ghostbsters’ find themselves bankrupt after a heap of lawsuits. Lawsuits that came about AFTER the citizens were spared from some big evil marshmallow dude. NYC  officials extend a restraining order so that no more ‘damage’ can happen to their city.

However, problems arise, as they always do, and the Ghostbusters are needed again. The people who cried out for their heads now need their help, [again]. It seems as though some evil is flowing through the veins of the community, infiltrating every crevice of life.

tumblr_mxjpb0i8ee1s6l9jdo1_400

 

It is discovered that it is indeed  flowing through the veins of the city. A pink ‘mood” slime is flowing and bubbling beneath NYC. A slime that feeds on negative emotions and anger. As fear and craziness ensues, the slime thrives…

Looking around social media today, I can’t help but feel slimed. Fear and panic, ugliness and broad sweeping beliefs that the sky is falling.  The vacant faces of news correspondents wondering how the heck we got here. Yes, the world has changed overnight. Finger pointing and hatred gets us nowhere.

I’m not one to give in to the panic, at least not today. I’m not sure if it’s having grown up in a politics loving family or the fact I’ve survived so much in my life that I refuse to give one faction that much control. I refuse to give in to knee-jerk reactions, fear and hateful speech.

I may be just one person, but I’m not going give another ‘one person’ that much power. [Unless it’s Jesus himself] I will not bury my head in the sand and hide. I won’t protect myself from impending doom and worry about ‘me’. As in the Ghostbusters movie, good vibes and unity can change the charge of the slime.

Hope is alive. Hope is universal. Hope is unifying. Maybe it’s a cheesy sing-along-song to unite us or maybe it’s the unity found in the  beloved Cubbies winning their first World Series in 108 years. 108 years y’all!!! For 107 years, the mantra has been “maybe next year”. This was the year!!!! But seven days later, the world is going to end.

I’m going to do my part to make a positive stamp on this life. We win, friends. The light always wins. A little flicker of a flame cancels out darkness. Always!

So here’s my a little ditty to get us connected….Love…Love keeps lifting me…

 

 

 

 

 

 

 

How Not to Fake an Illness

“..but you don’t look sick.”

Ugh, I can’t begin to count how many times I’ve heard this over the last 5 years. Shortly after MyLove and I were married, we discovered I had Chronic Kidney Disease. Long story short, my kidneys were no longer filtering correctly. Their function has ebbed and flowed like the stock market. Sometimes they have dropped significantly, only to rally and lead me to believe I was in the clear.

In recent months, I’ve felt really rotten. I have battled with healthcare professionals to give me some kind of answer. My stay in the heart hospital was brushed off as acid reflux, my fatigue was simply a side effect of my depression. While this may have been the case for some, I knew better. I know my depression. I’m sort of an expert at it since I’ve battled it since my teens. THIS, this fatigue was not part of my depression. And I’m pretty damn sure that acid reflux does not land you in the heart hospital for THREE days. With a simple eyeroll and swish of a pen, I was dismissed. Just. Like.That.

I begged and pleaded with a nurse practitioner, send me somewhere, anywhere, anyone. I didn’t care, just help me find someone who will truly listen. Cue the harp strings and angelic voices, I found a doctor who not only listened, but had answers. I had a diagnosis, I actually had more than one. [Autoimmune diseases tend to hang out with other autoimmune diseases; you don’t typically just have one.] I have a B12 deficiency, Fibromyalgia and Ankylosing Spondylitis. Stir that all up with some kidney disease and you get a pretty pitiful me.

The fatigue is overwhelming. The pain, constant and persistent. But, I don’t look  sick. Upon closer examination, you may discover the plethora of medications have caused hair loss. MyLove jokes about my eyes clicking* when we’re trying to settle in for a night’s sleep. And sleep, oh that jokester. Some days all I want to do is sleep, and at night, not a wink. I catch a nap occasionally, but it does not recharge my batteries. It’s as if I’m a defective cell phone cord, never fully charging. The wicked humor of my disease, when I’m idle too long the pain is excruciating. If I try to do too much, and I’m run down for days after. A roller coaster that makes you scream in anticipation and nauseous all at the same time.

While I’m busy trying to stay busy, the stuff that is supposed to keep my body held together, is quietly screaming inside. The medication designed to help alleviate the worst of it, makes me more miserable. No, this is indeed how to NOT fake an illness. This is how to fake fine. I don’t want pity or to look pitiful. My pride screams in a voice that resembles mine. I want my normal life back. I want to scream over the wasted years, I squandered my health as if it would always be well.

It’s in the screaming and noise of self-pity that I find my new-normal. I’ve discovered that I am a work-in-progress on MANY chapters of my life. My resume has now been altered, subtracted and added to. I don’t have the course perfectly laid out in front of me. And being the rebel I am, I would have thumbed my nose at the ‘best laid plans’ and go it my own way, anyway.  I’ve met people on a parallel path, it is a beautiful symphony of tears and cheers. We have become fighters for our own health AND our diseases. While I am no expert on the disease, I’m becoming an expert on my diseases. Trust your gut, your inner voice, press in and press on. You are your greatest advocate. Fight for YOU!!!

Life is a journey with rough terrains, smooth sailing, rocking the boat, dancing in the rain… and some days, you just fake it to make it.

 

[* that clicking noise, persistent dry eyes and Uveitis]

Today

Today I know I have Ankylosing Spondylitis

Today I will grieve the life I had planned
I will be sad,
For me
I will cry
And cry out
Why me?
But just for today
Today,
My body is broken
And waging war upon itself
Today,
I will be miserable and shout obscenities
I will be angry at no one in particular
Just because, today

Today my precious granddaughter turns three
Today,
Her smile will warm me
For a moment
Today,
I will cry
For her
She won’t know the fun loving
Sit on the floor
Putting puzzles together, Grandma
For very long
But today,
She has me
The grandma no different
From yesterday

Tomorrow,
Is not promised
In life or
In death
In joy or
In pain
Tomorrow is,
Unseen and unpredictable
The plans we make,
Can change in a heartbeat
We cannot escape tomorrow,
Wishing for yesterday

Yesterday,
Is gone
It wasn’t
Bad or
Great.
But yesterday,
I didn’t have AS
Yes,
Logical brain,
I did.
But I didn’t know,
Yesterday

Yesterday,
Sometimes,
Looks better in the rear view mirror
“Objects may not be as
shitty as you remember”
Yes,
Yesterday might have
really sucked, too
Everyone has a yesterday,
Not everyone,
Has a tomorrow
So today…

Today,
I will grieve
If I feel like eating
It will be
Ridiculously unhealthy
I just might,
Wash it down
With some wine
Today,
I will roll around
In self pity
For me
For everyone around me
But just for
Today

Only today…

 

Reasons Why I Am Not Blessed

Well, did that title make you sit up and take notice?
Did you think, she’s nuts!? (more nuts-er)
and… she’s off her meds, again!

Yes, I am nuts and medicated; but I am not blessed.  Well, not in this sense:

blessed

adjective bless·ed \ˈble-səd\

Simple Definition of blessed
: having a sacred nature : connected with God
: very welcome, pleasant, or appreciated
—used to make a statement more forceful

Watch out for your toes y’all… but this word has been so overused in Christianese. “How are you today?” “Oh I am just so blessed, thank you.”  I’m guilty, I’ll own it. But when I truly look at that phrase, while the intent is to give props to God, it has a certain arrogance about it. Forceful indeed!

Honestly, I don’t remember a time when God was not a part of me. As a kid, my parents would drop me at Sunday School and come back to retrieve me. I attended church and youth groups with friends, but I wasn’t raised in the church. My mom was a generational-cast-off-Catholic* and I think my dad and God had an agreement, “You don’t bother me, I won’t bother You.” I don’t really have a salvation story, it’s just always been. I have some great rescue stories and turn-around stories and Annisa-you’re-a-bonehead-stories to which God showed up in BIG ways. But to say I have a revelation, salvation story; no. I have a pretty shocking testimony, however… brace yourselves, it’s pretty deep… I AM STILL HERE!!!

I am still here, yep, sums it all up. Sexual assault survivor, teen mom, overachiever, striving spirit, depressed, anxious, medicated, suicidal, devastated, renewed – I am still here. Days I didn’t think I would be, days I didn’t want to be. Yet, here I am; but don’t call me blessed. The implications of being blessed points to God giving special favor. While I know that God has been my saving grace, I don’t consider myself in special, segregated favor.

People often tend to treat God as a Genie: 

One to bequeath gifts and health and finances and the perfect job, only in times of need on our part. We never speak to him, ONLY when we need him.

Some treat Him like the TV Infomercial Guy:

If I act in the next 15 minutes, You will get me out of this situation. But WAIT, there’s more! For just a nominal fee, (like going to church, once) You will restore ALL the dumb decisions I’ve made! Right? Act now, this offer expires soon!

And there’s my personal favorite, the Barterer:

Ok God, I’m going to give up chocolate IF you will just do this one thing for me! (anyone? anyone? thought so!)

[I personally believe] We don’t receive special blessings JUST because we believe. I know that will fly-in-the-face of some believers, but I’ve never been the docile type. Stay with me on the Crazy-Brain-Train…

There are believers all over the world; I have been to one of  the most underprivileged, desperate, no electricity, no running water, villages in Peru. I have hugged and kissed these little Grubkins, and found more joy and pure love in their hearts than any overindulged brat back home. So many of us would look at the two, side by side, and think, “oh, the American kid has so much more. So blessed.” and “Those poor unfortunate Grubkins, have nothing, how sad.” WRONG!!! Brown flag!!

 

To say that stuff makes you blessed is an insult to Grace

How can I say that God has ‘blessed’ me with things, and wealth and health, etc when children are living in poverty? Children are growing up in crack houses? Tsunamis and earthquakes happen to believers, too. I can’t view blessings as a reward for simply believing, not while so many suffer; cancer continues to ravage and kill,  a dumb-ass guy puts mouse poison on the salad bar at grocery stores, devastation all around. And Yet, I should have the arrogance to say, I am blessed.

I understand, know and believe that I am a Child of God, but I’m not the favorite kid. Yes, I also know that there is an opposing force to what God wills, and that we also have free-will. That still doesn’t make me blessed, special. I will admit, I used to correct people who would say that they’re ‘lucky’. Oh no, no, no….you are blessed! As I self analyze and [over]think my own words; this is what I actually said. “NO NO NO, you are wrong. Luck doesn’t exist. It’s because You are special. You got the goodies, oh favored kid!”

Yes, He is a good good father, and like any parent, God wants to see us succeed. He gives us free-will to choose a path, even if it’s the wrong one. He will wait on us, arms folded, to come back around. Inspire us to make better choices.  He is not the Genie, TV Infomercial Guy or Barterer, “Ok, Annisa, if you do this for Me, I will give you all your desires.” Nope, not how it works. God doesn’t discipline. He doesn’t punish, although many still live in that fear.  “Annisa, I saw that you partook of far too much wine yesternight, prepare ye for your smite.  {I know you read that in a Shakespeare-ish voice in your head}

Not even the pomp and self-glory of mission work, ‘ok Annisa, go to Peru or to a woman’s prison and reach out to those poor underprivileged, unfortunate souls. Show them how blessed you are” WRONG, again. “Annisa, go to these places. Have your heart broken, splintered into shards, and see that I love them too. Not more, not less. I love them, too. Humble yourself, you aren’t all that. What can you learn from them, Bonehead?” {yes, God calls me Bonehead}

God loves us, even when we are unlovable, even when we reject Him. Even, when we aren’t sure we believe IN Him, He believes in us. Picture in your mind, God gathering every believer in a row, linked arm in arm; He would look at each of us, and say the same thing, one by one;” I love YOU, I have such great plans for you, and you, and you…. ”

 

*MY definition of generational-cast-off-Catholic = Someone who’s parents divorced and could no longer attend Catholic Mass, only to marry a man who had been divorced, and not be able to attend Catholic Mass. {Thanks heavens, for the Catholics Come Home program}